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Losing a Loved One to Early Onset Alzheimer's I NOVA I PBS
ZZSamU0gK8U • 2020-09-02
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Kind: captions Language: en her name was heidi i just called her mom she was talkative she's brilliant creative i don't think i'm ever going to forget how special she could make you feel just by talking to you we started noticing more and more mom would have trouble remembering names she'd lose the threat of a conversation when you see someone that's able to exercise and take care of their family and they're not even 50 you don't think [Music] alzheimer's people call it the long goodbye i don't know how much of a goodbye it is all of the hopes and dreams of the future just kind of get destroyed evaporate it is a long gradual painful descent into nothingness i was not prepared for that [Music] alzheimer's disease requires both the presence of amyloid plaques and tangles which are made of tau what we can see is once there's a lot of amyloid that tau really begins to spread like wildfire [Music] these tau tangles spread faster in younger people and that may be because they have more working nerve cells as mom's alzheimer's progressed at first she forgot names and she forgot how to get around [Music] if you started humming a song or put something recognizable on the radio you could see that it was reaching some core part of her she was always empowered by music the alzheimer's singing group had heidi singing operatic solos when she couldn't add or subtract or even write her own name [Music] as it got worse she she forgot how to talk she forgot how to sing she forgot how to feed herself and to walk she forgot how to smile and then and then she forgot how to survive [Music] right now we have brain imaging that allows you to see if you have plaques that are at an alarmingly high level beyond brain imaging which is quite expensive a blood test for whether you have plaque in your brain is around the corner [Music] she was always adamant that you should sing the song the way you you want to and and she did
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